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City to host conference on Down Syndrome
Press Release
Wednesday, May 30 | 02:51 PM
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Dr. Surekha Ramachandran,
Pune :  City is hosting first of its kind conference on Down syndrome, one of the most common genetic birth disorders which is rarely spoken about. Down Syndrome Federation of India (DSFI) is organising its 2nd India International Down Syndrome Conference (IIDSC) in Pune between  31st  May and 2nd June  to create awareness about Down Syndrome scenario in India. Dr. Surekha Ramachandran, Founder, DSFI announced this during a Press Conference held in the city. Other experts like Tehnaz Ragi, co-ordinator IIDSC activity room, Shweta Ranka, a leading architect and parent were present at the conference to share the views on Down syndrome.  

Eminent doctors from Pune will be sharing their expertise and experiences with parents at the IIDSC 2018 event. This includes the like of Dr.Vaman Khadilkar, Dr. Rajiv Sharangpani, Dr. Archana Kadam, Dr.Rajan Joshi, Dr.Koumudi Godbole and Dr. Usha Pratap amongst others. A panel discussion to address medical issues helping parents to understand their wards better will also be conducted during the event. There will be various fun activities like painting, brain gym, dancing and games for all the participants, especially children.

This event intends to bring together all stakeholders like educators, health care professionals in the field of Down syndrome to bring about a positive change in the lives of persons with Down syndrome and request the Government to bring in laws to protect their interests in our country. A total of 30 families from Pune will be participating at the conference. Also, 182 parents, 68 children below the age of 10 and 21 children above 10 which will be a mixed group of children with Down syndrome and their siblings will be a part of the event.


Ramachandran also stressed upon the fact that ‘Down syndrome’ is not a disease but a condition that can be treated with right intervention. She also highlighted that almost 30 thousand children with Down syndrome are born in our country every year.

Ramachandran stated that, ‘While interacting with parents during DSFI initiatives, we came to realise that the day to day stress affects during conception. Also, today we are exposed to various radiations in the form of computers, mobile phones etc. So, taking these points into consideration it is important to conduct an extensive research to figure out if genetic disorders like Down syndrome can occur in children whose parents are in specific occupation like in IT field.’ 

Down Syndrome is associated with mild to moderate learning disabilities, developmental delays, characteristic facial features, and low muscle tone in early infancy. Many individuals with Down syndrome have various health issues. Through a series of screenings and tests, Down Syndrome can be detected before and after a baby is born.

(To read this news in Marathi Click here)
 
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